Global reviews highlight the dire need for action on endometriosis across the world's regions. Two studies published in The Lancet Obstetrics, Gynecology & Women's Health reveal stark disparities in endometriosis care and treatment, emphasizing the urgent need for global action.
Endometriosis, a chronic inflammatory disease causing severe pelvic pain and infertility, affects an estimated one in ten women and girls worldwide. However, the research shows that nearly half of all countries within the 194 WHO member states lack national policies or clinical guidance on diagnosis and care. This lack of standardized care contributes to significant global gaps in treatment and support.
The first study, 'Availability of region-specific endometriosis care guidance: a global scoping review,' uncovers striking disparities in the availability of region-specific endometriosis care guidance and treatment. Over a quarter of countries have no publicly available clinical recommendations, and only 7% have official government-endorsed clinical care guidelines. Many low- and middle-income countries have little or no formal guidance for providers or patients.
The second study, 'Endometriosis policy and delivery systems: a comprehensive global scoping review,' reveals that half of all countries have no policy information available. However, 96 countries are raising awareness of endometriosis as a national issue, 48 have placed it on the political agenda, and 12 have adopted policies for a national endometriosis strategy. Despite these efforts, the review highlights the need for coordinated national strategies involving policymakers, advocates, and patients to address the global burden of endometriosis.
The authors emphasize the importance of collaboration between governments, medical societies, and patient advocacy groups to create, maintain, and promote clear, region-specific endometriosis care standards. This collaboration is crucial to reducing diagnostic delays, improving quality of life, and ensuring equitable access to treatment worldwide.
The call for action is echoed in an editorial accompanying the studies, urging governments to treat endometriosis as a chronic disease requiring a coordinated national response. The WHO also emphasizes the need to translate policies and guidelines into tangible improvements in the lives of millions of people affected by endometriosis.
